Join our in-person workshop, exploring how rare disease patient groups can build effective, meaningful partnerships with industry.

When: 10:00 - 16:30 GMT, Wednesday 2nd December 2026

Where: The Royal Institution, 21 Albermarle Street, London, W1S 4BS

For rare disease patient groups, relationships with industry can bring valuable opportunities.

From making sure patient priorities are heard in research and development, to accessing expertise, building connections and creating opportunities for the communities they represent.

This workshop brings patient groups, industry and other stakeholders together to talk openly about the challenges and the opportunities. We'll look at:

The different ways patient groups can work with industry, and where to start

How to build trust while staying compliant and managing conflicts of interest

What a good partnership looks like, and how both sides can set realistic expectations

You'll leave with a clearer picture of how industry partnerships work, practical lessons from groups who have done it, and new connections across the rare disease community.

Learn more on our website here (https://www.rarebeacon.org/event/building-stronger-partnerships-with-industry/)!

Deposit scheme

Registering for this workshop will require paying a refundable deposit of £30 upon registration. This deposit will be kept safe in Eventbrite until after the training has been completed.

Following the event, if you have attended and signed in, you will get your full deposit back.

We understand that circumstances can change, especially in the rare disease community. Should you register for the event and realise you can no longer attend please let us know as soon as possible.

We will endeavour to refund your deposit in full provided reasonable notice is given. Reasonable notice for this event is no later than 7 working days before.

Find out more about our deposit scheme here (https://www.rarebeacon.org/news/our-new-deposit-system/). If you have any questions, please contact projects@rarebeacon.org.

Description supplied by the event organiser.