Join us to hear from well-renowned speakers, connect with and learn from other members of the Huntington's community.

We are currently not taking anymore bookings for accommodation. We may have more availabilty soon, please check back in a few days. Alternatively there are still day tickets left for the conference and accommodation can be found in the area. Please check the FAQs below.

For our 2026 annual Huntington's disease Community Conference and AGM we will be returning to the amazing venue we were at last year!

What's on?

Saturday 7 November 2026

We will be joined by a number of well-renowned speakers in the Huntington's community, with extensive knowledge of care, support, and research including:

Cath Stanley BEM, Chief Executive of the Huntington's Disease Association with an overview of 2025/2026 and talking about future plans for the year ahead.

Sian Baker, Vice Chair of the Huntington's Disease Association leading the Annual General Meeting*, which includes the appointment of trustees, auditors, and a financial update by our Treasurer, Nick Heath.

Professor Anne Rosser, Professor of Clinical Neuroscience, Division of Psychological Medicine and Clinical Neurosciences, Cardiff University providing an overview of current and upcoming Huntington's research.

Some of our Huntington's Ambassadors sharing their personal perspectives.

Uruj Anjum, Psychotherapist, Lecturer, Supervisor, Founder of Saiyna Therapy and Donna-Maria Dodson, Psychotherapeutic Counsellor and Supervisor, Saiyna Therapy exploring the emotional impact of Huntington's disease when relationships change.

Children and young people attending (up to 17 years) will have the option to join activities with our Specialist Youth Engagement team. In previous years, these have included activities such as bowling, laser quest, escape rooms and theme parks.

In the evening, we will join together for a three course dinner which will take place in Crewe Hall's spectacular Long Gallery which dates back to Jacobean times.

Sunday 8 November 2026

We will be running smaller more interactive workshops that you can choose from. Including topics such as relaxation techniques, reflexology, emerging therapies and palliative care.

Children and young people will join our Specialist Youth Workers for further activities, in previous years, these have included swimming, film morning and arts and crafts.

Please note: an adult over the age of 18 must be attending to purchase a child's ticket.

Is this event for you?

This event is for everyone affected by Huntington’s disease, whether family, friends, individuals or professional to come together to understand more about the disease.

How to book

The only way to book onto the conference is via the Huntington 's Disease Association. Bookings for the conference are not available through the hotel directly.

We have created a number of different ticket types in Eventbrite to help you to attend in a way that best suits you - whether that is for the full weekend or one day only.

You will be asked to provide room preferences and additional information, such as accessibility and dietary requirements, after you have selected your ticket types.

If the ticket types available do not meet your requirements (for example you also want travel and stay the night before) or you need any further support with your booking, please give us a call (0151 331 5444, press option 4 ) or email (info@hda.org.uk). Where possible, we will see if alternative requirements can be accommodated.

If you wish to stay over on Friday night or Sunday night, we have negotiated a special rate with the hotel, please call the reservations team at Crewe Hall on 03301071599. Let them know you are attending the Huntington's disease Community Conference and AGM to receive 20% off room prices.

Please let us know via info@hda.org.uk if you have booked for the Friday evening or Sunday evening. Although we cannot guarantee the same room on Saturday, we will do our best to accomodate this.

Please note that the event begins on Saturday therefore there will be no charity presence or charity activites on the Friday evening.

Please note, you will be required to make payment prior to completing the detailed order form to provide us with your room requirements and dietary information. Please ensure you complete this section to finalise your booking.

Please take a look at the FAQ section below for further information.

*Formal notice of the Annual General Meeting can be found at www.hda.org.uk/about-us/agm-2026

For more information on what information we collect and how we use it when booking onto one of our events, please see our privacy policy on our website.

Description supplied by the event organiser.