A practical MRCC event on Highly Specialised Services, rare conditions service development, research, commissioning and patient voice.

First Event: Highly Specialised Services and Rare Conditions Service Development

The Manchester Rare Conditions Clinical Innovation Exchange is a new MRCC-led forum for colleagues working across rare conditions services.

This first event will focus on Highly Specialised Services and rare conditions service development, with practical sessions on commissioning, service models, research and innovation, patient involvement and partnership working.

The day is designed to share learning from established services, discuss common challenges and help shape what a useful Manchester rare conditions network could look like.

Who should attend?

This event is aimed at colleagues and partners with an interest in rare conditions, including clinicians, clinical service leads, researchers, clinical academics, operational colleagues, commissioners, patient and public contributors, charity partners and appropriate industry partners.

Agenda

The full event agenda is available on the Manchester Rare Conditions Centre website.

View the agenda here.

Event details

📅 Date: Wednesday 2 December 2026

📍 Venue: Hyatt Regency Manchester

🕦 Time: Registration from 11:30am | Programme starts at 1:00pm

🎟️ Registration: Open now

Contact

For queries about the event, please contact:

MRCC@mft.nhs.uk

Sponsorship statement

This meeting has been supported by Alexion, AstraZeneca Rare Disease. They have not been involved in the agenda or content.

Description supplied by the event organiser.